To me, today is a holy day. Not because of something that may have happened thousands of years ago, but because it marks an important, life altering anniversary. Nine months ago today (April 17), this small family gathered around a white haired and bearded sacred being of earth and sky, and witnessed his final breath and heartbeat. None of us got to see him come into this world, but we were so honored to hold space for his grand departure.
Symbolism is powerful in my life. You could say it is my second language. In the metaphysical world of intuitive gifts, I fall somewhere in the range of empath and claircognizant. I’m a feeler and a knower. Since I have asked the Universe to speak to me in ways that I can understand, I have found that if I pay attention, that line of communication is always open.
Four years ago, I saw the signs and followed the synchronicities. It was nine months after I danced out of the role that had long sustained me in the corporate world. The symbolism of that timeframe is obvious. It is a gestation period for human birth. In February of 2018, a courageous friend shared in brave space his diagnosis and prognosis. Brian opened a portal for me at that moment, and I picked up my torch and mindfully stepped through the door.
On new years eve, at the portal between 2021 and 2022, I shared on Facebook the final words that my father left for me in his “Memoirs for Melissa”. It felt like closure of some sort, to come to the end of his written page in the year that he died. I said to the Universe and my father’s energetic being, “Daddy, thank you for these stories. Thank you for showing up and for bringing other sacred beings to join you. Thank you for taking those painful lessons and difficult challenges of your youth and becoming a kind, compassionate, patient, loving, beautiful being. Now that I have heard your story through your words, I wish to tell our story through my words. It will be a book about making friends with death, about eldercare and self care, about the power of sacred ceremony to transform sorrow, about respecting the autonomy of those we love as they journey toward transition, and about giving the love that heals.”
Since I had been writing for the last four years, it didn’t take long to build my manuscript. I found the very best publisher with whom to partner by following the signs and synchronicities. A doula assists with transition and transformation. I had been my father’s end-of-life doula, and Sharon Lund at Sacred Life Publishers became my book doula. She helped bring my book to birth. I had already reached out to her because she had published another book on this topic, but I knew she was the one when she called me and the first three digits of her phone number were also one of my angel numbers, 808. I see these numbers frequently. They are in the email address of the Boss Who Loved Me, and I associate a sighting as a strong reminder that I am loved.
Sharon and I discussed the process and determined this project would take about three months to complete. An astrologer I follow (Annie Botticelli) had stated that the days between March 3 and April 27 would be ideal for the launch or birth of creative endeavors, as all planets are direct for this brief period of time. I may be a skeptical believer, but when messages arrive in actual words that don’t require symbolic interpretation, it seems prudent to follow. As we completed multiple edits and my dear friend crafted the cover from a beloved artwork gifted from my Tribe-brother, I considered the timing. April 17 would be the nine month anniversary of my father’s death. What are the chances that this exact date, with this symbolic meaning, would be remotely possible? According to Sharon, the chance was slim.
The final version went to the printer on April 14. Experience informed my book doula that it could be three weeks before it appeared for sale on Amazon. I knew it was going to be impossible to have my book officially published and available at Dad’s anniversary, but hoped it would at least occur before the planetary deadline on the 27th.
Because the seasons are shifting in Florida with the arrival of higher temperatures, I went ahead and secured the memorial tree I wanted to plant in my front yard. It would be dedicated to filling, somehow, the absence of my father and of my beloved ailing oak. So on the morning of April 15, the landscape professionals arrived, and were so patient and kind that they allowed me to read aloud my words and intentions, while also sprinkling some of my father’s ashes into the open womb of earth that would receive the tree I’d chosen.
“Hail to thee, sacred Traveler:
Nearly nine months have passed since your beautiful soul crossed through the veil of starlight. Your physical presence is terribly missed. Your spiritual presence is deeply felt with enormous gratitude.
When you left, our sacred oak, too, fell. The loss of you both has left a punishing light and sorrowful emptiness to fill the chasm of your absence.
May this tree be a symbol of rebirth. May these branches hold space to nurture and nourish the birds that bear your loving messages in a language I can understand. And may she grow taller, fuller, and more colorful throughout the years, providing shade and serenity for all to behold.
May the flowers that surround this keeper of your memory be a blessing to all you’ve cherished in life. May they blossom and bloom for your delight, with sweet memories of your grandfather’s garden.
May the sacred earth of my father’s former vessel bless these roots and hold them close, feeding beloved tendrils with the healing light of love.
Blessed be beloved beings. Your presence upon this sacred land will be a blessing for all my days that remain. Thank you for being healers, protectors, nurturers, and sentinels of peace, love, hope, and rebirth. I love you. I love you. I love you.”
As I poured the ash into the earth, I looked to find they had fallen first into the shape of a crescent moon, and with the final toss to empty the vessel, a straight line. My father’s remains had fallen perfectly into my own personal sigil (a magickal symbol I may use instead of my name) and also in the form of a handheld crossbow. This was something Pop had said to me after he broke his hip. He thought I should have one, and I figured it was the pain medication. But maybe . . . just maybe it was a portent.
Later that evening, I was having dinner with a friend inside a restaurant (a rare thing since the start of the pandemic), and I heard someone say my name. It was the Boss Who Needed Me and his wife. I can’t tell you how mushy I get when I see them, it is so rare. But he is such a significant part of my story, that my heart just melts in his presence. Though he was addressing my friend, I took what he said to heart. “I want you to be sure that when Melissa’s book is available, I will be informed. I want to be the first to buy it!”
So, last night (April 16) while hanging out with my Mom, I popped over to Amazon and typed the words that had only been mine for the past nine months. Mommy’s little secret until her arrival. And much to my surprise . . . she was there! Sharon says that Pop made magick happen for me, and I know without a doubt that this is true. I texted the Boss Who Needed Me to let him know that if he really meant it, this was his chance. He texted me back and said, “Melissa, we ordered it this evening.” So now… I am free to share the news with you.
Exactly nine months from the day my sweet Pop became one with the light of truth, he is being symbolically reborn in the form of a book that shall ever be his memorial. That this date also falls on the Christian celebration of rebirth could be a coincidence, but who would ever believe that? Dad sent the signs and I followed his guidance. He has always shown up for me when I needed him most.
Dear Universe, thank you in advance for allowing this work of love and light to be a blessing to others. The journey itself has already been a great blessing to me.
Welcome to the light, Persephone’s Passage! I’m so glad you are here.
PREFACE “I once asked myself why I write and discovered that as much as I wish for my words to offer light and healing, I write for myself. I’ve determined that what I call a Swiss cheese memory allows me to live in the now. Accessing memories for me is a challenge, so when I read what I’ve written, it gives me the access I crave. Seriously, I have Googled things I’ve written to be sure they are mine.
The reason I’ve published these words is to give birth to something of myself that will remain when I am gone. It is a memorial to my father, and a tribute to the same care I intend to offer my mother, as I walk with her into the underworld (may it be a long, long journey).
Though I have loved and cherished many children and goddess babies, I have no children of my own. As I offer Persephone’s Passage to the light, I do so with reverence for its perfection. When I think of what ideal parenting might look like, it is to keep it safe, feed it well, and provide a firm and balanced foundation from which it may launch itself into the world. Once it is out in the world, my only expectation is that it exists in authentic truth and joy. I will not judge it by its number of pages, by its popularity and how many people call it friend, or by its income. I will not weigh it down with expectations of any kind. I will simply be grateful that I was blessed to have this creation of pure love move through me. I love it without condition.
May those who find it feel the depth of the love that resides within, and know that they, too, are cherished, valued, and sacred. Namaste. Blessed be. Amen. So mote it be. Aho. It is done.”
Thank you for walking this path with me, dear ones. Many have been extremely supportive of this endeavor over the last few months. Some have been more than supportive, and I am overwhelmed to the point of lacking words to describe how completely loved they have made me feel.
A mantra that I have engaged to help with feeling worthy of receiving, is this: “May I be a blessing to others; I am open to receive.” I am open and grateful!
When Dad died, I realized I would once again have to shift my self-identity. I am no longer his full-time caregiver. I am forever his daughter and also . . . I am Melissa Baker, Author of Persephone’s Passage: Walking My Father into the Underworld – The Spiritual Journey of an End-of-Life Doula.
Persephone’s Passage may be found on Amazon, and soon will be available through other online sellers and even possibly in bookstores as Ingram distributors update their catalog.
Nearly 20 years ago, my parents and I attended a journaling workshop at the First Unitarian Church of Orlando (1U). I can’t recall exactly what I loved about it, but it involved a binder with tabs, and a specific suggestion for how to mindfully access memories in order to write them down.
We shared things we’d written, as we felt comfortable, with the class, and though I cannot recall (read: swiss cheese memory – things fall through the holes) exactly what my father read, I can tell you that it had impact. I asked my Dad, at the time in his early 60s and recently retired, to consider continuing the journaling project. I told him that I would love to have stories that he would share, even if a little tough to tell, that I could hold onto when he was gone.
I can remember my Mom telling me how enthusiastic he was about the project. She said that he was really into it. When he started having issues with neuropathy in his fingers (he typed with two forefingers on a good day), he acquired Dragon Software, so that he could speak his words onto the page.
My parents moved closer to me in 2014, and it was divinely timed. My father’s health gradually deteriorated, and I became his full-time care giver in 2018, until he died in July of 2021. During that time, I would often think of that project, and ask if he could tell me how to find it. He couldn’t.
When he was gone, it was foremost on my mind, to find the pages he had crafted. When cleaning out his office to turn it into a hospital room at home, so that we could bring him home as a virtual paraplegic after he broke his hip, I was mindful not to misplace or throw out any CDs that might have contained sacred data.
My brother came home for Thanksgiving. It was the first time we’d been together since he said goodbye to Daddy in the ICU. Mom and I had a few tasks for him, and my personal priority was finding Dad’s pages. He had to do some updates, but we were finally able to open and forward three documents to be reviewed. The first one is titled, “Memoirs for Melissa”.
When I started to read the opening of the first document, I glanced at the bottom left of the page to see how few pages were there. Only 6. There were only 6 pages in that first of three documents. That’s when I knew I couldn’t read right through them. I had to savor each paragraph. For once those pages were complete… the pages of each document… it felt as if my father’s story would also be complete.
I decided to share one story per day with my loved ones through facebook. I tag his five siblings, my mother and brother, and one of his cousins who still lives up north. I even initiated a hashtag, my first, as I’m really not a social media conformist. But I did realize how handy it might be to find the series of posts, once they were separated by anything else I may share on my timeline (mostly art that speaks to my soul) on any given day. So… #memoirsformelissa was brought to birth, by and for my father.
When I finished the first document of six pages, I opened the next. Only 9 pages, but some of the stories were simply cleaner versions of those in the first document. So, I opened the third and final document my brother and I found on Dad’s hard drive. There are 12 pages in that version. It is obviously the same document as the second, but waxes on a bit longer. I’m still not reading ahead, though. I can’t. I cannot bear the thought of an ending.
These pages, are delivering more magick than one might imagine. My first thought is about the priceless nature of these simple words on paper. My love language is ‘showing up’. I show my love by committing to be present, and by being reliable, trustworthy, patient, and kind. I ask for nothing more in return, and realize that this is not something everyone can offer. When I asked my Dad to consider dedicating his journal to his own stories he might leave for his daughter… he could have loved the idea, but failed to make the time to bring it to fruition. But that’s not what happened. My father showed up for me. He always did. Even months after his body was left behind, his spirit is rising from the pages he blessed long ago. This is my most valuable inheritance.
My next thought on the magick of Pop’s pages is the way his words, and mine combined, are inspiring and touching the hearts of others. I’ve received several private messages from friends who tell me how much they are enjoying Pop’s stories. One friend is even inspired to do the same for his daughters, realizing that we are now in our 50s and access to our memories is fleeting. He’s not wrong… my Dad started writing things down in his 60s. When I asked him to tell me stories in his 80s (after he’d broken his hip, and I feared our time might grow short), he could talk for a good hour, but the stories were less cohesive and not quite as full.
I love that people who knew my father, and people who are just now getting to know him through his words and mine shared on facebook, might just choose to leave behind their own magick to be unveiled by sacred beings who are hungry for their presence, long after they are gone.
I don’t really have anyone to whom my stories will have meaning, but I’m glad for my ability to write things down these last few years. My father’s stories from childhood are revealing to me the many hardships in his youth that paved the foundation of his becoming. His early childhood illness and disability (with asthma and epilepsy) carved out the future of a compassionate, patient, and kind husband, father, social worker, scout leader, dungeon master, and Santa representative. I can almost see each of his stories as the crafting of a single flagstone that is laid onto solid ground, and as my father steps forward, he crafts another and sets it down. Each of these stories, however far they may come from his past into his future, bring the man he was, upfront and center, into the life of his two children.
Speaking of his children, we have not made it into Dad’s storytelling, as of yet, and there are so few pages left. I am guessing that my brother and I will have to write the chapters that follow. I suspect our parents see so much of what they wish they’d done differently, they sometimes overlook the many things they did so well. For example, I know that Dad’s parents had personal challenges that made things difficult for their children. But those are not the stories that held the mind of my aging father… it was the goodness on which he focused. What a gift it is to hold space for every truth, not just the ones that hurt.
There you go again, Dad… still teaching me, even when you feel so far away. You just keep showing up! I’m so grateful for every little thing. I love you most.
Thanks for walking this path with me. I love knowing you are here.
Mom and I are working on our so-called, ‘new normal’ these days. I think it still seems odd… the lack of Dad. It still feels unnatural to sit in his chair, or to have the first half of the day to myself. Mom doesn’t need me in the same ways he did. This new normal is… different.
We are giving each other more space, while creating new routines of togetherness. Before, much of my energy was focused on Dad’s comfort and wellness, since he could no longer walk for the last seven months of his life. Through my soul-daughter-medium, Pop said that it is now time for us to bond, mom and me. We are learning from each other through the ways that we grieve. As we process our great loss – the departure of her husband and my father – we are observing the truth of one another more clearly. We are learning and growing… together.
I have been dubbed the feeler of my family, for I tend to be more expressive with my emotions. Mom and I are mourning differently. Through the study of death and dying, I have prepared myself for an intentional journey through the end of life with my parents, as well as my own inevitable transition into the mystery of what comes next. While it has helped me find peace and comfort in the idea of death, it has not diminished the grief that I feel in missing my father. For so long, I went to sleep worrying about his comfort and awoke with anticipation of his needs. That’s a hard habit to break. I was hyper-aware of the blessing of my ability to serve, and how fleeting that time would be.
I am learning that, though she is not demonstratively emotive, Mom is processing her grief silently, through introspection. Last night, Mom shared with me that she often wakes thinking of Dad’s last days. Like me, she considers what might have been done differently to have changed the outcome. If he hadn’t been scared, because he couldn’t breathe, might he have refused being intubated? But reality was, that his oxygen was plummeting, and had he refused… none of us would have been present for his passing. His sisters and brothers would not have gotten to say goodbye. My brother and his wife would have missed holding his hand – having been kept away by Covid-19 for so long. So much more would have been lost.
I know these things cross her mind, as she faces her own mortality. We talk about her ‘Five Wishes’ for the end of life, which are similar to my Father’s. She does not want to be kept alive on a ventilator. She does not want to go through what Pop went through. It was difficult to witness. It causes heartache for the survivors – having to ‘pull the plug’. I assure her that what Dad did, by approving intubation, was a gift to all of us. That the emotions we would be feeling had he suddenly been gone, or that he might have left without allowing us to hold him and love him just a little while longer would have been unfathomable. I can see now, that I feared betraying him by letting him go too soon, while he feared betraying me by leaving when I was not in the room. We served each other well, Pop and I. I assured Mom that she need not make the same choice. I will not betray her.
Mom and I watched a few episodes of an Amazon series called Solos last night. The first episode features Ann Hathaway in her basement. This monologue is a conversation with herself… past, present, and future. The character is working to perfect time travel, and we gradually learn that her intentions are to be able to jump ahead, into the future, to escape the torture of witnessing her mother’s decline from ALS.
As this story unfolds, and we come to understand the pain and suffering of both the daughter who is present and providing full-time care for her mother in decline, we also learn of the regrets of the future daughter, who did find her escape, and lived with regret for the rest of her days. Together, they ultimately choose to destroy the probable future, to ensure one version of this daughter remains fully present through her mother’s end of life.
As my Mom was serving me a piece of her favorite cake, that I ordered and picked up for her earlier in the week, she shared something else with me. She said that when she went to bed the night before, and found that I had made her bed for her, with an extra blanket (because it was going to be Florida-cold that night), she felt so loved.
She was astonished that though she feels like she was not a Grade-A mother, that she should be treated as if she was. What I want her to understand is that it doesn’t matter how imperfect we are… we all deserve to be loved and to be treated with kindness and respect – always. I feel that getting to serve my father through his end of life brought this message home for him, and my intention is to do the same for my mom. I wish for her to know that without a doubt…
I am here. You will not walk this path alone. You deserve this!
As I walked home from ‘tucking her in’ for the night, I cried happy tears. I cried for the sweetness of a simple life, and for the great fortune of alignment, which enabled me to be here in this moment, with this woman, to experience this insight and healing between us. I can see the greater gift of my father’s passing, in the path that he paved for us to have these conversations about death, in a way that we couldn’t before his example.
I could feel the presence of my father, as I digested his words from my session with #RedRoseReadings. Mom and I are using our time wisely. We are deepening our bond and our understanding of one another. We are learning what we might offer each other, in these days that belong to just the two of us, that feels like love that heals. And as I gazed up towards Orion’s Belt – twinkling in the clear night sky, I said aloud, “Thanks for showing up, Pop!” Because THAT is MY love language.
Thank you for walking this path with me. I love knowing you are here.
If you’re curious about the mystery of connecting with a loved one on the other side of the veil, consider reaching out to my brilliant soul-daughter, at https://redrosereadings.com/.
I started writing this post in the last week of October. So, imagine, if you will, a moment of time travel, and go back in time with me. Otherwise, I’ll have to rewrite some of this post, and it may never see the light, in order to ‘bee the light’. Thank you for your kindness and selfless work of magick.
The beauty and mystery of this time of year has always spoken to my soul. Even as a child, when the depth of my understanding was quite shallow. Dressing up in costumes that my mother had sewn was a highlight that cradled the mad delight of walking through the darkness from house to house to receive sweet treats. My mother’s handicraft insured that my costumes were unique and fabulous. Morticia Addams was a favorite of which I was sad to outgrow.
It wasn’t until I was in my early 20s at the beginning of my spiritual journey that I learned the deeper and much older significance of the holiday. In the US, we call it Halloween, and it is about wearing costumes and greeting neighbors and strangers with the words “Trick or Treat”. Much like many other holidays we celebrate in the US, the rituals are committed without the reverence of ancient meaning.
There is much written about Samhain, All Souls’ Night, and Dia de los Muertos, and there is plenty to learn from simple internet research, including concerns about cultural appropriation. A part of my seeking has been to find the spiritual path that resonates with me. Though many friends grew up Christian, I grew up Unitarian, and was invited to build my spiritual path from the ground up, free from expectation and dogma.
My ancestry is English / Irish / Scottish, so it may not surprise anyone to learn that what resonates with my soul includes a foundation of earth-based reverence, and a healthy helping of Celtic spirituality with a sprinkling of mysticism.
In Celtic tradition, Samhain marks the turning of the Wheel of the Year, when we (in the northern hemisphere) are moving out of the long days of summer and into the darkness of winter. It’s my FAVORITE time of year! Pronounced Sow-wen, it marks the mid-point between equinox and solstice, as the days are growing shorter. It is also considered the Celtic New Year (the final harvest – marking an ending before the new beginning that comes with the rebirth of the sun at the winter solstice, as the days begin to grow longer again). It is also known as Ancestors’ Night.
I’ve been on this path since 1992, so this is the 30th Samhain I will celebrate. And yet, it is the first that feels truly sacred and somewhat urgent. When I started writing about death and dying in early 2018, I recognized the blessing of having suffered few losses, compared to many. Most were not unexpected, and were people I’ve loved, but was not especially close to.
This year is different. This year… my father is on the other side of the veil. I have never longed to see, hear, or touch someone more. Less than four months gone, it feels as if a lifetime has already passed. The longing I feel induces pain in my chest and head. It’s hard to imagine becoming accustomed to his absence. But of course I will… in time.
Before and after he died, this summer, I felt connected. My intuitive-self felt guided and supported. My inner-skeptic was silenced by what resonated as truth and comfort given in moments of longing and reach. Messages came through nature, oracle cards, and synchronicity. But recently, I have been feeling disconnected, and frankly, abandoned.
I went to the mountains for ten days of respite, and though I found deep peace and comfort, I did not find my father there. Though I traveled with my laptop, I did not open it to write. I was disconnected. And when I came home, my landscape had changed. The remaining Oak tree that was a twin to my neighbor’s ailing oak, the other half of the squirrel-super-highway that used to stretch across my entire yard, had dropped a giant limb. My remaining sacred sentinel is now half the tree it used to be.
It feels as if every larger-than-life, great being in my life has fallen away. My father and these two oak trees have represented symbols of protection in my life. Without their towering presence, I feel unsafe and exposed. It is difficult to navigate a path forward, in such unfamiliar terrain.
All week, my emotions have been floating on the surface of my heart and mind. My emotional support being, now living many hours away, rather than minutes away, held space for my longing and grief, as I shared how absent my father feels. I was missing the messages from nature that I’d come to expect.
Every morning, I brew my pour over coffee with hot-water circles of gratitude for the elements, for my guides and angels, for the safety, wellness and protection of myself and those I love, and finish with – “thanks in advance, Daddy, for revealing your presence to me in ways that I can understand”.
The next morning, I reported to my friend, that the Mourning Doves had returned to the bird feeder, something they started doing after Dad died… previously only foraging on the ground. I felt seen and heard. I felt the return of my father’s energy. As a skeptical believer, I realize how silly this sounds. And yet, I cannot deny the comfort and joy that returned, simply for their arrival.
The next day, there were three messages in rapid succession that WOWed me. The first was a sound that my cats heard before me. As I investigated the odd placement of the knocking sound, I discovered through the library window, that a Wren was pecking at a Mud Dauber’s nest on the window sill. When I googled the spiritual meaning, I learned that they symbolize rebirth, immortality, and protection. They are associated with the arts, and those who write. They are harbingers of rebirth.
A bit later, I was drawn into the front yard. It was a gloriously windy day, and the trees were going with the flow – a beautiful dance. I noticed that the uncarved pumpkin on the outdoor altar was oddly leaning. This is where I make offerings to the spirit of nature (a table cut from my neighbor’s ailing oak), and my friend’s children and I placed a few seasonal gourds out to mark the arrival of October. In Florida, the heat will argue with you about what season it really is, but we like to force the issue, when possible. Upon inspection, it appeared that the pumpkin was definitely losing its youth and elasticity. Since I was there, I peered through the brush to see the tree-sized branch that had fallen from my oak tree, and then followed it around, to check on all it enveloped.
As I turned to peer through the side yard toward the back, I gasped to realize that a Hawk was quietly perched upon the gate of my wooden privacy fence. For the longest time, I stood there watching with reverence, as he returned my gaze… back toward me, left eye holding me in stillness. The longer I stood, the longer he stayed, and what I heard in my mind was this: “See! I’m right here. I’m not going anywhere. All is as it should be.” And the wind shifted, taking this majestic creature, not into the sky, but into the tree by the gate. He was ‘waiting right there’, just as Pop always said when I left his presence – “I’ll wait right here!”
I decided to come back into the house, despite the opportunity to stare all day. I googled the spiritual meaning of Hawk, which is: spiritual messenger, clairvoyance and spiritual awareness. I suppose I will choose to trust the message I heard. Then, nature’s winged spirits of air delivered a final, glorious vision.
As I looked up from my second research moment of the day, my breath was taken by an unbelievable sight outside my window. A bird was feeding, whose colors were woven of pure magick. Gem-tone shades of red, blue, yellow, and green caught my eye. A bird I’d never seen beyond photos arrived with the final message for the day. The Painted Bunting, according to google, arrives to encourage us to use our ‘voice’ to speak from the heart, and to add more color and vitality to our lives. So… here I am. Speaking from my heart and welcoming more color and vitality.
Synchronicity arrived the next day, when a friend posted a John O’Donohue poem, that spoke to my grief and my colorful guest. As when the Painted Bunting was spotted, I cried my words of gratitude, “Thanks for showing up, Pop!”
Beannacht by John O’Donohue ~ On the day when the weight deadens on your shoulders and you stumble, may the clay dance to balance you. And when your eyes freeze behind the grey window and the ghost of loss gets into you, may a flock of colours, indigo, red, green and azure blue, come to awaken in you a meadow of delight. When the canvas frays in the currach of thought and a stain of ocean blackens beneath you, may there come across the waters a path of yellow moonlight to bring you safely home. May the nourishment of the earth be yours, may the clarity of light be yours, may the fluency of the ocean be yours, may the protection of the ancestors be yours. And so may a slow wind work these words of love around you, an invisible cloak to mind your life.
It feels as if, these messengers and messages are arriving to quiet my sense of feeling exposed and abandoned. They remind me that I am protected, and that as the giants of the past each fall away, I am invited to plant and create something new. As I reflect on how significant each of these beings have been in my life, delivering a feeling of being safe, loved, and protected… I now find myself wondering what I might leave behind, onto which someone else – 50 years from now, may reflect with gratitude for the loving protection they feel in this sacred space.
Last night, I gathered with a few friends who knew and adored my Dad. I bought flowers that he would love, and my friend intuitively brought fried chicken thighs – one of Pop’s favorite meals. We watched the 1993 animated film of Ray Bradbury’s The Halloween Tree, and reflected on the many cultures and traditions that honor the dead this time of year. And we sweetened our sorrow, with slices of key lime pie, also in Pop’s honor.
When everyone had gone, I wrote a letter to my father, and left it beneath his photo with a candle burning as a beacon to call his spirit home. If he came to me in my dreams, my memory did not hold it.
I asked him to continue reaching me and teaching me, to help me release self-doubt and find greater confidence in the messages I seek and receive. He taught me a great deal in life, whether consciously or not. A mindful soul may continue learning and growing from the past. An intentional soul has the opportunity to learn and grow through curiosity and openness, beyond what was previously imagined. Thank you in advance, dear Daddy, for showing me the way.
My final nod to this sacred Samhain was a special call with my soul-daughter. She is a medium, and I felt that an annual conversation with Pop might be an interesting tradition to begin. Once again, the skeptical believer is curious and willing to suspend disbelief, until a sense of resonance is found. In the young woman, who could be my daughter – were I able to choose one, I have found deep trust, resonance, and a sense of belief. We hit record at 2:02pm, my angel number for Pop. Coincidence? I think not!
For 90 minutes, Pop showed up. What was really interesting, was that he spoke to the many things I’d written about in my two-page letter. His words, delivered through #RedRoseReadings were meaningful, healing, and comforting. They affirmed that I am hearing him clearly, and that when I am through with grieving, I may learn to trust myself enough to know that what I am receiving is not just a result of wishful thinking or a creative imagination. I’m mostly there, because I already know I’m just not very creative, so I often conclude that whatever comes to mind is actually coming through me from something beyond my understanding.
A friend of mine told me that she hadn’t really felt inclined to seek a conversation with her father after his death. So, I asked myself why I felt such a longing. I was there for my Dad for nearly all of his days in the last three years of his life and have few regrets needing closure, so what could I possibly need to know? What I realized is that I wish to continue learning about things that feel impossible and fantastical. Who could possibly be a better teacher than the man who cared for me for all of my days, and trusted me to care for him in his final years? No one. Just Pop. And it turns out that the shift in perspective when we slip through the veil, provides an opportunity to find words for a world of silent thoughts that never found form in life. Life is fascinating, and death… well, it is just a part of life. Learning and growing is a never-ending cycle of rebirth.
We are always in the process of becoming. As I gradually let go of who I was – my father’s full-time caregiver, I am opening to who I may become. It’s all a great mystery, and I am open to receive.
Thank you for walking this path with me. I hope that the messages you seek are coming through loud and clear. I’m so happy you’re here.
Last week delivered the painful blow of closure. My exploration into the path of an End-of-Life-Doula was sparked by a 2018 conversation with a friend. He shared the challenging news of his diagnosis and prognosis, which prompted my life-altering question that blessed us both. I shared that story in a previous blog post:
My friend and I live on opposite corners of the country, and while we held each other close, we communicated infrequently. Each of our communications informed me of his failing health. He was prone to positivity, but would often allude to the truth of his situation. I worried that I would not know when he’d reached the end of his path. I lacked a connection to anyone else in his local world. So, when he popped into my mind, I would send a text message to let him know I was still here… holding him close and wishing him WELL.
Our last reciprocal communication occurred after the death of my father and his first birthday without him. I sent a note: “Sending love from afar. Hoping you are safe and well. Missing you so much. Love, love, love.” He replied: “Always love hearing from you. I wish i was doing better, but don’t seem to be making much progress. My legs have pretty much stopped working, so now I use a walker 24/7 which isn’t ideal, but I’m not going to let that get me down. Continue to be optimistic. All in all I know things will get better. I hope you are doing well. I’m certain you are!! (heart, heart, heart)”
I wrote back: “Oh, beloved. I’m sorry for this news of added struggle and body betrayal. I wish I were closer and could offer support. My dad died on July 17. Yesterday was his 84th birthday and last month was my parents’ 60th anniversary. I’m so grateful he was mine. He’s my new angel. I’ll send him over to shower you with blessings. I love you.” I sent pictures of my Pop, so that he might recognize him should he show up in his dreams. But in truth, if one can sense the presence of an angel, I wanted him to know that my Pop, who knew the reality of body betrayal, coping with his own for most of his life, while supporting others throughout his career, would be a safe receptacle for his hopes and fears. My friend promised to keep his eyes open for Pop.
My worries about not knowing were put to rest last week, when my phone rang and I heard an unfamiliar voice. My friend’s husband spoke his name, and I knew. I knew that he was calling me with bad news about our mutual beloved. I had texted last week, and again that morning – without reply. I’m so grateful that he took the time to reach, even in the depths of his grief.
He shared that his husband had been struggling to walk in recent weeks. He required assistance getting to the bathroom. It was obvious that the cancer had wrapped itself around his spine, and wasn’t about to let go.
He reminded me that my friend did not thrive in a state where he lacked control, and informed me of his powerful choice. They live in a state that offers Death with Dignity, and this is the path my friend chose for himself. His beloved hoped for more time, but absolutely honored and supported his end-of-life preference to avoid greater suffering.
With his doctor’s support, a compassionate end was arranged. In Oregon, one with a terminal diagnosis may be provided a medical prescription for departure. I have offered this compassionate care to the cats I have loved. Instead of a long and languished or painful end, my Vet came to the house to bring comfort and release. I cannot imagine why this is not standard practice with humans who suffer with no hope of future wellness. I am grateful that it was possible for my beautiful friend. He lived, and left this world, on his own terms. A peaceful warrior, from brilliant beginning to elegant end.
As we spoke, I was reminded of the duality of emotions with my father’s passing. Though he could not speak at the end, he left his wishes in writing. Releasing him from life support was my final act of loving kindness and respect for the man who loved me for all of my days. I did not betray him by holding on. I honored him by letting go. My friend asked his husband of 25 years to let him go, and he did not betray him. The doctor was present, and it was a blessing for these two lovers to peacefully part in the physical sense. It’s hard to describe the honor of presence during our final transition… but there is a gentle coming of peace that arrives with the grief of longing. I hope to be so well-loved when I reach my end of days.
My Mom’s friend posted an article this week about people ‘taking matters into their own hands’ at the end of life, by ceasing to eat or drink. It states that one can go 7-10 days without food or water to accelerate rather than to prolong death. But the truth of the matter is that this is still a painful ending, and it is not necessary.
About 20 years ago, my grandfather (my Dad’s father) was in his mid-80s, living with leukemia and macular degeneration. He was ready to go, and asked his doctor what that would look like if he stopped taking the plate full of meds that were keeping him alive (a regret of many, according to what Stephen Jenkinson refers to as palliative care causing prolonged dying, rather than prolonging life). The doctor said if he stopped eating and drinking, he would pass within a week or two.
And so, that’s what he set out to do. He discussed it with his wife and adult children, and the appropriate paperwork was established with DNR (do not resuscitate) signage posted throughout the home where he chose to die. Two weeks passed, and my grandfather… did not. He received news that a dear life-long friend of the family died in her sleep. He declared it was not fair. “Why am I still here?” He relented to the suffering and allowed his youngest daughter and caregiver to administer a bit of soup and water. It took that sweet man a month of suffering to pass from this world. It was a month of painful witnessing and space holding by those who loved him, too. It was an atrocity that he was not permitted to part in comfort and peace, on his own terms.
There are more stories of suffering at the end of life that I could use to prove this point and argue for a countrywide declaration of a Compassionate End for those with a terminal diagnosis who wish to die with dignity, but I want to return to my position of gratitude. I am grateful that this sacred being, whom I adored, who came into my life to play a vital role in preparing me to care for my father, was able to stand at the portal between the worlds, and step through the veil without regret.
I have a candle burning for him, just as I did when my father left in July. I wrote the words that came to mind as I held him close. The flame dances in the jar, and he inspires me to write.
It feels as if my world has come full circle. I met this man before leaving the corporate world, and our conversations ignited end-of-life study and the timely first steps on the path of making friends with death. I was able to walk, without fear, beside my father to the edge of the unknown. And now… both of these sacred beings have stepped off of my path. I am so grateful for every little thing.
Farewell mighty warrior and treasured friend. Your last name was the same as Dumbledore’s Phoenix, and I see that you have lit the heavens with your beautiful light. Your transformation from earthly appearance to energetic form renders you no longer limited. Knowing you has been my great joy, and I am forever changed by your friendship and love. Thank you in advance for communicating with me in ways that I can understand. I promise to keep my eyes and mind open to receive.
Thanks for walking this path with me. I love knowing you are here.
The absence of my father is such an odd reality. For 3.5 years, he was my primary focus. He was my purpose. His care, his survival, his wellness, his presence were up to me to preserve. A month and a half into life without him, I no longer go to bed worrying for his comfort and safety. He no longer suffers. He is safe. He will not call in the middle of the night requiring my assistance and care. He will never ask Alexa to ‘call Melissa’ again. My phone will never inform me that ‘Dad Needs You’ again.
I miss him. I’m glad he doesn’t need me. I had forgotten what that was like, until I started looking through old photos. There was a time, long ago it seems, when he could not only care for himself, but he also did a great deal to care for others. I’m grateful for the reminder that old photos provide. My swiss cheese memory invites me to live in the moment, rather than living in the past. I had been so focused on our current reality that I had forgotten about our past… his past.
My father was a man of integrity and unconditional care. Aside from our family, he cared about his beloved Unitarian Church community for 50 years, the wellness of his clients throughout 30 years of Vocational Rehabilitation for the State of Florida, for underprivileged youth in The Boy Scouts of America, and for those who beheld his visage and saw the manifestation of Santa Claus. But all of those things had fallen away over recent years.
He let go of his career at 62, when the stress of his job invited an increase in epileptic seizures. He let go of his Commissioner role with the Boy Scouts at 77, when his mobility challenges and a move to be near his daughter made release necessary. He let go of being Santa at 81, when December arrived and he was in the hospital and rehab after a fall. He let go of walking when he was 83, after the fifth fall in a week resulted in a broken hip.
Long before I ever dreamed of becoming his caregiver, when I was still in Elementary School, Pop placed an ad on an actual bulletin board in 1701, a local comic book shop, seeking others interested in playing Dungeons and Dragons (it was the late 1970s). My father was the Dungeon Master to a number of teenage boys (including my brother and cousin), who would later tell me stories of how the days spent with Pop in his scripted fantasy world were among their favorite childhood memories. He provided a safe space for a group of young people who craved a sense of belonging.
I love that my Dad was a geek. I never had to suffer through the annoying noise of a single sporting event. Our adventures included attending Star Trek Conventions (that’s what they used to call Comicon and the like, back in the day). I had a pair of Enterprise dangly earrings, and a color glossy 8×10 photo of Mr. Spock playing his lyre. We saw Star Wars in the theater, though I can’t say if it was opening day (I was only 8, after all). I can, though, recall being really WOWed by the opening credits, let alone the rest of the film – perhaps my first image of a ‘strong female lead’.
Sometimes, he went along for the ride on things that my Mom wanted me to experience. He stayed in the hotel room, after driving two hours from home for my benefit – while Mom and I attended my first concert (I was 9 years old). We were there to see Andy Gibb, live in concert. Oh, how I adored Andy. Oh, how I adored my Dad.
I wasn’t really a ‘Daddy’s Girl’, though it might surprise you. He and I didn’t really have much in common while I was growing up. He was always there, and I always knew I was safe and loved… but I think he and my brother had more in common, as members of the Central Florida Atari Club at the birth of home computers, while my mother was taking me to concerts and igniting my passion for travel.
As I reflect on the last few years of our lives, I feel enormously grateful for the gift of every little thing that transpired since 2014. My parents bought a house up the street from mine. My father’s mobility was in decline. In 2017, I left the corporate world and was later introduced to 72T, the IRS loophole that enabled an early retirement.
In 2018, I was fully present to recognize the signs of the need to step into a more active role in managing the lives of my parents. The prognosis of a friend with cancer led me to the discovery of a path of study for End of Life Doula. Dad started falling down and needing help up. I was able to be there. I was able to acquire the tools we needed to serve his needs. I gradually learned the intimacy and sweetness of washing his hair and helping him dress. I took him to every doctor appointment, every ER visit, every transfer into and out of Rehab for recovery from falls and infections.
In 2020, when he broke his hip and found that he could no longer stand or walk (which had long been a struggle), I asked him to let me care for him as he had cared for others throughout his 30 year career with spinal injury survivors. And… in 2021, this July, when I finally had a weekend of respite, and he decided he was ready to go to the hospital… saying to me, “I just don’t know how I’ll get out of here.” Well… we all know how he got out of there. Sigh…
Last week, I took Mom to lunch with her Salon group. These are a remarkable group of women from the church, where my parents have been members since I was 2. I seem to recall that they formed during the last Bush Administration, to share fears and frustrations about politics, among other things. Throughout the first year of Covid-19, before the vaccine, they met weekly on Zoom, to discuss current events, politics, and how everyone was surviving life in pandemic. I went along as her driver, but was invited to stay.
They had all been expressive about appreciation for the care I had offered my parents. I was asked if the online studies had prepared me and served me well in caring for Dad. The truth was, the actual caregiving seemed to come naturally. I had never been a parent, and I had never been trained in any form of nursing, but somehow, I acquired the skills I needed, in order to keep dad safe and at-home. Much of it was initially terrifying. I worried about failing him, a lot. But, when I had no idea of how to change a diaper for an adult, or how to get someone into a sling for the hoyer lift, Pop and I watched a YouTube video, and set to the task of mastering the art of whatever was at hand.
I do feel, though, that the End of Life Doula studies did serve me well. The required reading alone, helped me shift my perspective of death from something to fear to something to honor. I was consciously walking my father through the end of his days. Each day that I arrived to serve my father, I was fully aware of the honor and privilege I had to do so. That I was financially free to dedicate my time and full attention to his care was a blessing I woke and spoke gratitude for each day. Having the capability and desire to give him the love and compassion everyone deserves at the end of life was a gift to him, to myself, and to my whole family. There were times when the stress of it all was overwhelming, but I was very careful not to wish it away. Not to… wish… him away. But when it was time to let him go… I knew how to respect his wishes and had the strength to do so.
I had trouble finding tears during those difficult days. I suspect my consciousness didn’t want the universe to find me ungrateful. I often found myself aching for his suffering, rather than my own burden. With so many health issues and physical limitations, he was pretty much always uncomfortable. Either from osteoarthritis or neuropathy. It was difficult to witness his suffering without being able to fix it. All I could do was hold space most of the time. But now that he’s gone… the tears come with grace and ease. I cry daily, even if just for a brief moment. The release is a relief, and I almost hope it won’t stop. It feels good to feel.
His 84th birthday has come and gone… without him. The one month anniversary of his death arrived unbidden. Just like so many of my friends and loved ones who lost beloveds before me… we are facing a whole calendar of ‘firsts’ without him. Meanwhile, we wonder if we will find the files of stories he started writing for me a decade ago, after he, Mom and I attended a journaling workshop at church. I told him that I would love for him to write down stories about his life, that I might have when he was gone. Mom reported that he was really into that project, and when he couldn’t type anymore, he ordered software to help.
In recent years, I asked him if he knew where I would find those files, and he never had an answer for me. I did have a moment of clarity after he broke his hip (I’d always heard it said that people don’t live very long after this particular event), and recorded a couple of hours of him answering my questions and telling stories from long ago. I haven’t played them back yet. I’m a little afraid to hear his voice, I guess. I miss his presence too much. I’m not sure what his disembodied voice will feel like inside my broken heart.
I still walk up the street to my parents’ house… Mom’s house, a few times a day. Mom doesn’t require the same level of care that Dad needed, and she’s been trying to make me feel like she can do things on her own, so that I can have a little more of a life of my own. But, its hard for both of us to let go. We are still working on developing our new normal. I have noticed that sitting in his vacant chair feels unnatural to me, even though it is better for my neck and back to do so when Mom and I watch a movie. I am still holding space for him.
I have had canvas prints made and they now hang in her living room and mine, to ensure his image remains present, even when his body is not. I talk to him and ask for his support each morning and evening… reminding him to show up in ways that I can understand. I speak his name to the wind (Daddy-Daddy), and remind him that he is missed. And sometimes, I feel him near.
A month ago, I woke to find that my phone had sent two text messages to two different friends. They were likely messages I had sent, but never went through… but the timing and the messages informed me otherwise. The first one was to a friend who had asked how we were doing, and I replied about my gratitude for a little extra care Pop would soon receive. The second message was brief… “I love you more.” Without a doubt, my father found a way to communicate, in a way that I could understand, his gratitude for all I had done to care for him, and exactly how he felt about me.
Mom and I are slowly getting to the other side of phone calls and paperwork to ensure Dad’s death benefits for her are secured. As we do so, she is moving toward ensuring the same for my brother and me, when she is gone.
But we are being gentle with ourselves. There are days that one task is handled, and then naps are had. Mom reminds me that she could drop dead tomorrow, and I insist that would be very inconvenient… and I am pleased each morning to receive a note on messenger that simply reads: “UP”. Keep them coming Mom! I’ll wait right here.
Thank you for walking this path with us. We love knowing you are here.
Thank you in advance, dear Universe, for allowing words to flow directly through my fingertips, for my mind is filled with grief and fog. There is too much importance to allow for escape. So, please… let this page hold space for me and my broken heart.
Just a little test escape… a weekend of caregiver respite, desired FOR me by my parents, and required by my body and soul, to enable my ability to continue serving with grace, ease, and joy. Three nights. It will only be three nights. I can trust that everything will be okay for three nights… in order to engage in self care. In order to pour my body into living waters, to be held in the womb of Mother Earth, in order to be reborn. Just three nights, to see how it goes, then possibly plan for longer.
For weeks, I planned and worried. A place to go that will feel healing. A selection of friends who stepped forward to serve ME. A stand-in caregiver to serve my father at each edge of the day. An extraordinary new neighbor, with an offer of support. It would only be three nights. I had an ominous feeling. My stomach didn’t feel quite right. There was a Tower in the reading, and a Four of Swords. Would it be the release and rest I needed, that would transform, or would it be… the thing I dare not speak. I worried that maybe we five wouldn’t get along. I worried that I should cancel. I worried about the loss of a large sum of non-refundable investment. I worried that we would get there, then be called home. I worried that something would happen, and I would be hours away. I worried that he would ask me to stay. I worried that he wouldn’t ask me to stay, even though he meant it.
There were signs, in the days before. Stepping out of my parents’ house on June 22, a snake greeted me atop the hedge. Then on July 8, my cats alerted me to a snake on the threshold of my own home, that I later discovered upon opening the door, was shedding its skin. I do not fear snakes, and feel that a sighting brings affirmation and reflection. I ask myself, in those rare moments, what might be the message? The assumption: Transformation is coming. Soon, that which has become limiting will be released and offer freedom.
The day before departure, he wasn’t feeling well. There had been a couple of weeks of discomfort. We’d met virtually with the doctor, and followed guidance, but he didn’t feel good, and I struggled with leaving. I asked him to let me take him to the hospital. They could do tests, and he would have expert care in my absence. I could truly relax. His reply: “No, I’m not ready.” Respecting my parents’ autonomy as they age, has been a boundary I have worked not to cross… sometimes stepping on toes. My Mom calls me ‘bossy’, sometimes. I have decided to be a servant, for better or worse, and I mean to respect their every wish.
The day before departure, my brand new next door neighbor called me to say that she should meet my parents before I leave, so she could offer assistance while I was away. At some point, in recent months, I had asked the Universe to deliver the right people to enable my respite. I have come to know that my request was filled in abundance. (I hope this will inspire you to start asking for what you need, too.)
I can’t remember Friday morning. I believe I stopped by while he was still sleeping. My friends arrived for the long drive north. I texted his caregiver about my concerns, and what to look out for. Don’t forget his pills. Drinks with electrolytes in the fridge. [Even though I’m scared, I trust all shall be well.] I texted that night to be sure he got tucked in. The first full day I’d been away since Thanksgiving, when he came home from rehab after breaking his hip – now a virtual paraplegic. 11pm, and all was well.
At 5:30am on Saturday, my phone lights up with “Dad Needs You”. My brother programmed Alexa to call me at his command. I didn’t know how to program anything else, and instructed him to call me if Mom (who is hearing impaired) couldn’t hear him. I would reach out from where I was to deliver assistance. His voice: “Melissa, I’m ready to go to the hospital.”
By the time all calls had been made, all five of us were in the living room, four beloved friends holding space for me and my Pop. I called my Mom with no answer. I called my house sitter with no answer. I called my new angel-neighbor, who followed instructions to find my key and then my parents’ key, to open the door for paramedics, who would carry my father to safety. “Don’t you dare come home.”, my parents said. He is receiving the care he needs. You can rest.
My coffee was served with a shot of Kahlua. I was carried to the sacred spring where my body could receive cold healing. I made calls upon return to the log cabin in the woods. They were running tests. A UTI. Should probably see a Pulmonologist as an outpatient. Fierce daughter reply: “My father is homebound. While in the hospital, doctors come to him. He may not be discharged until we know why he can’t breathe.” He later threw up, though he’d not eaten all day. He told me by phone he didn’t feel good, but not to come home. I screamed and cried as my friends held me close. It was the hardest thing to do… to not go home.
He was admitted that night. My mom was delivered to and from the hospital by my angel-neighbor. More tests. They would care for him to enable my respite. They would call with updates (I had to call every time.) It was hard to stay, but impossible to leave. My body, my soul, my heart needed respite. I needed my friends to hold my soul together and feed me the love I had given to others. They, too, are my angels.
We built a fire, and asked the flames to cleanse and purify my sorrow, my fear, my fatigue, and that which was ailing my father. We made wishes with treated pinecones, which burned green and blue. I thanked the universe in advance for holding my father close, for making him feel safe, and for giving me the strength I needed for whatever would lie ahead. His caregiver visited him in the hospital on my behalf, bringing him his glasses and tablet. He’ll want his books and puzzles, after all… while the tests are done and doctors are seen.
On Monday morning, we packed up and drove home. I checked on Mom then went to the hospital. I told him that staying away was so hard. He didn’t want to eat. He drank from a cup I prepared for him, but just a bit.
[As I type, two Mourning Doves have perched upon the feeder outside my window. One is preening and looking at me, while the other eats from the feeder, looking up at me, too. I’ve never seen them do this before, usually gathering bits on the ground. Their symbolism from dying.lovetoknow.com reads: “The dove’s appearance to someone in mourning is often viewed as a visitation from the deceased loved one. The person in mourning senses a message of hope or encouragement from their deceased loved one. Others believe the mourning dove is a messenger sent by angels, spirit guides, or even God..” Seriously… they are still there. I see you.]
I went back to ‘tuck him in’ Monday night, and returned Tuesday for our ‘morning ritual’. He didn’t want to eat. He didn’t want to drink. He said: “I just don’t know how I’m going to get out of here.” I watched him rest. I told him I would come back after a nap. As he did every day, he said: “I’ll wait right here.”
I was preparing to return to the hospital when the phone rang. The nurse said he was being taken to ICU. His oxygen was in the low 80s. I didn’t get to see him. I waited. Visiting hours ended. I called to say, “I’ll wait right here.”
The doctor said, he had given them permission to intubate and put him on a ventilator to work out the problem. We learned he had severe pneumonia. I told my brother to come. I informed my father’s five siblings. I went home to tell my Mom.
On Wednesday, my brother and sister-in-law drove up, as my father’s only out-of-state brother drove down with his wife. In the rest of the hospital, Covid restrictions meant that a patient could only have two visitors per day. Gratefully, ICU patients could have two visitors at a time.
We sat by his side, watching the machine do its thing. I remembered how it was reported that many Covid patients did not survive coming off of the ventilator. They assured me this wasn’t Covid, so there was hope.
My parents have gifted my brother and me with preparedness. When they moved closer to me, they updated their will, gave each of us power of attorney, established the line of healthcare advocacy, and advance directive / five wishes.[The male cardinal has just stopped by the feeder for a bite – my symbol for my love language – ‘showing up’. Thank you, love, for showing up today.]
In my father’s notes, he declared that his wish was not to prolong death. He listed what he considered to be life-support treatment to include “major surgery, blood transfusion, dialysis, antibiotics, procedures, devices, medications, (other than to keep me pain free) should not be used to prolong life. I have lived my life with love and service to others, made my own mistakes, suffered my own pains. When it is time to leave, I only wish to do so with love and dignity.” He marked the box if he was close to death that read: “I do not want life-support treatment. If it has been started, I want it stopped.”
I discussed these things with the doctor. We agreed to give it some time, while the family gathered. On Thursday, as my brother and I sat with Dad, before he and his wife would return home to care for my sister’s beloved mother with Alzheimers, and their teenage granddaughter, I heard a beautiful voice from a nearby room.
Out stepped a woman with a guitar, and so I inquired. By prescription, patients in ICU could have music therapy. Lexa offered to give therapy in advance and get permission later.
[The tufted titmice are now here… more than I’ve seen before. Usually 4 at a time, but today at least 6 or 8 (“The prayers that you are speaking over your life are heard and the Tufted Titmouse is a reminder that blessings are forthcoming. It is a symbol of faith. And an encouraging message for you to keep it.”). And the female cardinal is peering down from the oak branch.]
The therapist asked for a favorite song or genre, and I told her that he prefers folk music. She found John Denver, and when I heard the first title, I knew it was right. A life-long friend of mine used to come to our house for safe haven when we were young, and she had been distressed that Dad was so ill while she was traveling for work. The song Lexa performed for Pop was Sunshine On My Shoulders. I recorded and I cried. She dedicated it not only to Pop, but to my brother and me. As hard as it was for me not to leave respite, I know it was hard for he and his wife to go back home. Seeing how music affected Pop, I set up his tablet to stream the Folk Music channel on Amazon. I told him I would see him tomorrow, but he didn’t say, “I’ll wait right here.”
On Friday, I felt a shift. I was talking to Dad as I walked about the house, pouring my morning gratitude into coffee. “Thank you in advance, dear angels, for holding my father in the light of love, and for guiding me toward right action.” I pulled a card from Alana Fairchild’s Journey of Love Oracle, and the message was, SOFT. It was number 47 and the message was on page 111. It read as follows:
“A sanctuary bathed in soft light, your heart is receptive, inviting, and gentle. It brings strength to the weary, comfort to the lonely, and healing to the wounded. It is a magnet for all that is needed – for you, your beloveds, your world. Don’t imagine you must always be the fighter, going against the part of your nature that longs for harmony and peace. This is your time to be soft. To surrender. To let the subtle waves of the heart invite love in, and to receive. In doing so, you will give so much.
This oracle brings you a message of peace. Surrender now. Be soft. Even just for this moment of quiet reflection. You have perhaps been working too hard at growing and living. Take some moments to replenish and allow the divine to help you, dear one. Be soft so you are receptive to the Divine. It is when we let go that we truly perceive the obstacles that lie between us and oneness with the divine lover. Let go and perceive that the divine lover is already awakening in your heart.
You are the softness he desires You help light his way You nurture all That he holds dear Though tempest clouds dismay
And in the quiet of the storm His gentleness comes through And in the shelter of his arms His heart is there for you”
When I got to Dad’s room, his skin was red with fever, and his heartrate was more than double its norm. They were allowing him to breathe on his own with the ventilator only offering oxygen. This, they said, was the process of trying to take someone off of the ventilator… letting them strengthen, then rest, then strengthen some more.
I texted my mother, my brother, and my father’s siblings, and I told them that I felt we should let him go. Though it pained us all, we were in agreement. We chose not to betray him. We chose to honor his wishes. We are capable of hard things. This is the hardest thing I have ever done. I spoke to two doctors and his nurses. If we took him off life support, he would not survive. If we kept him on for weeks to see if medication and machines could manufacture a new beginning, we would risk bringing him back to the surface, only to suffer the continued pain of life inside a broken, 84 year old body. He would eventually be moved out of ICU, and placed where the care would not be ‘intensive’, but lacking.
Daddy’s siblings came to see him and to say goodbye. They felt the decision was the right action. Since he is the eldest of seven, they were saying farewell to a brother they had known every single day of their lives. We talked about our history of lost loves, regrets, and signs. My Uncle told me that as he and his wife read my post that morning about the oracle card I had drawn, his wife had opened her wallet to reveal their room key, partially obscured in its pocket, it read: “It’s Time To Let Me Go”.
Between visitors, I read to my father. On his first day on the ventilator, I read to him poetry by David Whyte and John O’Donahue. And then I read him my latest blog post about the tree in my neighbors yard that will soon be removed. As I read those words to him, I realized that every word of Deep Grief and the Ailing Oak, had been written for him. Seriously, EVERY. WORD.
When Mom visited Dad, it was hard. They’d lived together for 60 years, and didn’t really talk much when he was not unconscious. She wasn’t sure what to say when it seemed he wasn’t listening. But I assured her that he could hear us. That night, she sent me a message that read: “You know what Dad likes? Winnie-the-Pooh.” And so, that is how I spent the last full day with my Father… reading to him the book that he once read to me. I remember the four of us circled in the living room, taking turns reading chapters as I was learning to read.
After five chapters, I reminded Daddy that when his body was gone from us, he was instructed to haunt us. My brother and I both requested that he show up to us in ways that we could understand. Every morning when I lifted him out of bed and into his chair, he insisted on listening to his music. With a love of Folk Music, I found a station and pressed play. Here were the first three songs that played, before visiting hours ended, and I was forced to leave him behind… hearing him say: “I’ll wait right here.”: Sailing by Christopher Cross – “Just a dream and the wind to carry me, and soon I will be free.” Followed by, Just the Way You Are by Billy Joel – “I said I love you, that’s forever, and this I promise from the heart. I couldn’t love you any better. I love you just the way you are” And the last song my father sent to me before they made me leave was, You Are So Beautiful by Joe Cocker – “You’re everything I hoped for. You’re everything I need. You are so wonderful to me.”
Okay Pop… music it is. You will communicate to me, in part, through music. I’m listening.
That night, I came home and asked our friends and loved ones to hold my father close. I shared the words of Phowa Practice from the Tibetan Book of Living and Dying, and asked them if they would say this prayer, or one of their own, on his behalf. [We are wealthy in our friends.] I asked one friend to drive my mother and me to the hospital the next day, and my life-long friend flew in to stay the night and say good-bye to the father-figure that she deserved. I spoke to the owner of our local crematorium, whom I discovered during End of Life Doula studies a few years earlier. We shared deep, meaningful conversation, and more than one synchronicity. I decided to commit the sacred vessel of my father to her care, when it was time.
I probably don’t have to write down for posterity that it was impossible to sleep, or how a body holding grief and empathy for the dying feels not a single inch of comfort. Everything is clenched from scalp to toes. The grieving become the embodiment of pain and suffering.
On Saturday morning, we moved through thickness and nausea. Not a moment spent without question. Is he ready to go? Are we ready to let go? How will we survive this day? Are we making a mistake? Will he suffer? Is he suffering? Will we collapse under the weight of not knowing? Have I misread the signs? From his advance directive and five wishes, have I betrayed him by waiting this long? Have I betrayed him by not waiting long enough? Will my knees fall out from under me? Have I prepared the right words for his soul to hear? Will he follow them into the light of all that is? Will he be stubborn and choose to remain in suffering, just to be with us for a while longer… like that Thursday before my trip, when I asked him to let me take him to the hospital? He is the one on the ventilator, so why am I the one that can’t breathe? Daddy-daddy… I love you.
We arrived at the hospital and our friends and companions said their good-byes, and we all stepped out after the paperwork was signed and respiratory therapist came in to remove all of the tubing that filled my father’s mouth, throat and nose. My mother and I returned alone, and I called my brother and sister-in-law, who wanted to be with us, though they could not be physically present. The nurse would come in to ensure Dad was comfortable. There was a gurgle of moisture in his throat. His eyes were closed, but when we spoke, he would turn his head. [Should I have opened his eyes for him? Did I fail him again?]
I spoke the words of Phowa, and asked that he know he was forgiven for anything that he may have thought or done, and that we hoped he would forgive us. When my mother spoke those words [“I forgive you, and I hope you forgive me.”], he turned his head toward her and his mouth changed shape, though he could not speak. In that gesture, I know there was forgiveness between them.
Dad’s brother, who had driven down when he’d heard the news, joined us in the room. He was committed to being present for all of us. I read a poem shared by a friend, written by Byron Ballard. The words are stirring and felt just right. We looked out the window, and the puffy clouds created a blue opening in the sky. I read these words and invited my father to go through the portal… just like in Stargate. It is open and ready for your next adventure.
Words of Byron Ballard
[Beloved brother, husband, father and friend:] You have come to the end of this pathway in a journey to which we bear witness.
You have come to the end of a pathway that is barred with a gate and a door.
May this door open swiftly and silently. May this gate give you a moment’s grace in which to rest your spirit before you venture through.
We stand here with you, as your companions, as your family, for you are beloved. But, for now, we must remain here. We cannot go with you to this old land. Not yet.
For you will see the Ancestors. You will see the Beloved Dead. You will walk among the Divine Beings that guide and nurture us all. You go to dwell in the lands of summer and of apples, where we dance forever youthful, forever free. We can hear the music in the mist, the drums that echo our sad hearts. We can see your bright eyes and your smile.
And so, we open the gate. We push back the door. We hold the gate open. We glance through the doorway, and with love and grief and wonder… we watch you walk through. Hail the Traveler! All those remembered in love, in honor, live on. Farewell, o best loved, o fairest, farewell.
I re-read to him the slightly edited letter that I thought I was writing to my ailing oak tree, but found it to be truly for him.
Beloved, sacred, holy being of earth and sky,
Thank you for loving us. Thank you for extending your beautiful branches into our lives. You have long stood sentinel near our home, offering shade and shelter for myself and many. Every summer, you host the return of our screaming cicadas and I am transported to childhood with memories of freedom. As years have passed, you have lost limbs and branches, and I have feared the day when your leaves would drop in the spring, and not return. And yet, you have continued to bloom… thriving through adversity… a body dis-eased but stubborn.
Every day, you remind me to thrive. You validate my own choice to nurture and support the lives and well-being of others. My own scars, bulges, and flaws are held in the light of love, because I have learned to love myself as I have loved you, even when gravity pulls you downward.
In this moment, we cannot fathom your absence. When you are gone, we will feel empty. Many will become temporarily homeless and afraid. Cicadas will rise from slumber and discover the lack of you. The view from our window will be naked and bright, and our hearts will be curtained no longer with branches and leaves, but with sorrow and longing.
I hope you will forgive me for being powerless to save you. I forgive you for not being strong enough to ensure your safety. I love you for the roots that have broken concrete, reminding me that Mother Nature is more powerful than anything man can do to limit Her progress. I love you for the trunk and branches of holding, which have been the playground of squirrels that have long entertained the cats who live here. I love you for your leaves of change that remind me that everything is temporary – as old leaves fall away to reveal fresh new growth each February.
Everything is temporary. Everything is temporary. And so, we must also say goodbye. We have to let you go. Thank you for loving us and for inviting us to love you back. We will miss you when you are gone… every. single. day. But we will also remember you with gratitude and great pleasure, for the memories you have provided. New growth will come again, you have shown us that truth. And just as you have embraced our home and property with your kindness, love and protection… we will be open to receive.
Because of your love, we have no choice but to love again. We love you. Thank you. Hail and Farewell.
I chanted the healing chant and the river is flowing chant, that I once sang to my goddess babies in their mothers’ bellies. I played a piece of music a member of our beloved church community shared with me that morning. The nurse came in to bring him more comfort. The gurgling was still there, and she left to ask the doctor about giving him another dose of something to dry it. My uncle stepped away for a few moments.
I pushed play on the Amazon Folk Channel I’d been playing each night when I left him. It had stopped with the question, ‘are you still listening?’ Wondering how long his body would choose to hold onto his tethered soul, I hoped it would bring comfort. And here… is what had been waiting to be played all day… The Air that I Breathe by the Hollies – To my mother, my brother, to my sister-in-law, and to me… my father sent this message: “All I need is the air that I breathe and to love you.” We laughed and we cried, for the irony of a beautiful being whose lungs could not hold oxygen. We watched the number growing smaller and smaller, and we were all honored and heartbroken to bear witness to the grand departure of our beloved Traveler as he walked through the gate. It was 1:52pm at his last visible breath, and 2:02pm at his final heartbeat. My new Angel number… 2:02. When I see it, I will know he is near.
“Peace came upon me and it leaves me weak, so sleep silent angel, go to sleep.”
Thank you for walking this path with us. There is a long, long way yet to go on this journey of grief, and we know we are not alone.
I love you, daddy. Send me the songs and the signs, please. I’ll wait right here.
Mercury Retrograde is a good time for reflection and release. So, this weekend I started clearing out my closet. I left the corporate world in 2017, and I’ve spent the last four years, it seems, metaphorically unpacking. I started by figuring out what I DON’T want to do. I determined that I didn’t want to return to the corporate world, and I didn’t want to continue doing what I’d done for the previous 25 years. I spent a couple of years writing out where I’d been and who I was; curious about where I’m going and who I might become.
In the last year and a half, I have found purpose and direction. I have chosen to take what I learned managing the lives of executives – transforming those skills into eldercare management for my aging parents. Being of service is my joy, and I can think of no better way to serve in the foreseeable years to come, than to the endeavor of helping them each feel safe, nurtured, and loved for their remaining days. It is a privilege to have the opportunity to do so. Not only because I want to, but because my retirement savings and the 72T loophole allowing access to it, provides such freedom.
For quite some time, I have been aware that the clothing I actually wear is a tiny portion of what fills an entire closet (or two) and dresser in my home. My style never was corporate, especially since the last phase of my career was spent where business casual and jeans were permitted. But between no longer identifying with anything ‘business’, binding denim, or the maxi dress, bohemian goddess style that once resonated, there is quite a bit of letting go to be done in my dressing room.
What surprised me, as I started flipping through clothes hangers, was the hesitancy I felt. A lifetime has passed since I last donned any of these items, and yet… there was momentary uncertainty in pulling down each piece, folding it, and placing it in the box of surrender. Contemplating how much money was spent on each piece. Pondering a number of items never worn – as if I tried on someone else’s style, then failed to claim it as my own. Can I do this? Can I say farewell to that woman who abandoned her wardrobe? Will she return with regret for all she’s lost? Am I leaving her naked and vulnerable?
This culling feels like an act of severance. The woman who purchased these garments and wore them, doesn’t live here anymore. The current resident is different. Her once long hair, no longer dyed blonde, as all falseness and pretense has been cut away. Shorter, white and silver curls now frame her full and make-up free face.
This woman no longer tries to fit in where she doesn’t belong. She is finally exactly where she is meant to be. She is valued, appreciated and loved for exactly who she is, exactly as she is. Consequently, clothing once sought to make her feel pretty, professional, or desirable is being replaced with that which makes her feel nurtured, comfortable, unhindered, and unburdened. No more binding required, she is abundantly at home in her own skin. The opinions of others are not more important than her own comfort.
There is glorious freedom in this second half of life. Discovering that one can live a simple and joyful life with less (less income, less expectation, less judgment, less time given away to those who don’t matter) is liberating.
Perhaps I once bought clothing to fill a hole. I guess they call it ‘retail therapy’. It all seems silly and wasteful now, but I won’t belittle the woman I was. I will simply sit in gratitude for the woman I have become. I am now hole-less. I am becoming more whole.
As I pack up the remaining items that have caused me to pause, I will bless each piece with love for the new body it will embrace. As for each new owner of my former closet couture… May she feel nurtured, protected, comforted, and held in the light of love. May she know that she is already goddess incarnate, not because of what she wears on the outside, but for who she is on the inside. May she walk through the rest of her days in belonging, feeling valued and treasured exactly as she is, for exactly who she is. May she know that she is sacred and whole. May she feel safe, secure, and free to speak her truth and may she walk in beauty, having all she needs and plenty to share.
Thank you for walking this path with me. I love knowing you are here.
This former wardrobe will be joyfully donated to a local charity called Adriana’s Attic, Inc. Their mission is: “To help adults and children in need of clothing, hygiene items, food, and medical supplies. We believe that spending a few hours volunteering your time to help the working poor and homeless in our community and around the world is critical.”
Every Saturday, since the Spring Equinox of 2020, I have hosted a weekly online gathering of my Sacred Gardeners. These beloved beings joined me for mindful workshops every eight weeks in 2019, and when we couldn’t continue the tradition due to Covid-19, we adjusted. During uncertain times, we found comfort in our togetherness, as we virtually gathered to find reassurance that those we loved were safe and well. We reminded each other that everything would be okay.
When we reached our one year anniversary of weekly meetings, and as we began to celebrate each vaccination, we affirmed how meaningful this connection has become in each of our lives, and how we wish to continue checking-in weekly, even when we are free to safely return to the former gathering schedule.
Following the Holding Space format of checking-in, which I learned from Heather Plett (in the nick of time – finishing up the 6 month course about the time that the world went into lockdown), we would take turns sharing what we’d been doing and how we were feeling over the past week, and then we’d check-out by sharing the plans we have for the week ahead, inviting support and encouragement, as needed.
A recurring theme, as I asked my sacred gardeners to hold space for me over the past year, has been about what I call my swiss-cheese memory… the way that things fall through the holes. I have mostly found comfort in my concern by realizing that I am forced to live more fully in the present, because I am not holding onto whatever may have occurred in the past. Though forgetting something important, like giving my Dad his morning pills, or locking their back door before heading home for the night, especially worries me.
Swiss-cheese memory isn’t new for me. Even as a teenager, my Mom would ask about what might be happening in the life of a friend, with whom I’d spent the day, and I could recall that we had deep conversation, but very little specifics (i.e., she got a new job, but I can’t remember where or doing what). I’ve joked that your secrets are safe with me, because I may not even remember that we ever chatted at all. I will sometimes start telling a story about a memory, only to be reminded that the person I am telling was with me at the time.
I was referred to a Neurologist a couple of years ago, and his assessment was that my memory wasn’t bad, but that I had trouble accessing it. He prescribed Topamax to see if it would help, but after a week of a constant headache and other discomfort (that I can’t quite recall), I let go of the dream of finding resolution.
This week, I actually forgot it was Saturday. Seriously. I failed to set the reminder for the call, and forgot to head to my parents’ place a little early to get Dad out of bed and fed to get home before the start time of my call. I forgot all about this event that I’ve hosted for 58 Saturdays in a row, until the alarm on my phone reminded me that I had 15 minutes before my Sacred Gardeners would arrive in our virtual circle.
Many of us speak of lapses in memory, and fears of being unable to learn and retain new things, but my biggest fear is that someone I care about will feel that something I’ve forgotten might mean that I do not care, that I was not listening when they were speaking, or that I have failed them in our friendship. I have only ever wanted to be remembered as a good friend, and someone who cared about the well-being of others. I hope that translates, somehow… even when I’ve forgotten your name.
I have often been inspired to sit down and write, but by the time I’ve gotten from the point of inspiration to my laptop, the reason has been lost. So, when I finish a piece and post it, there is a level of gratitude and celebration for the act of completion. When I started writing a couple of years ago, if someone asked me what I’d been up to, I would read them my latest blog post, because frankly, my answer would have been quite brief, unless I could also look at my calendar to be reminded that I did something fun last weekend. I thought that I was writing to touch the hearts of others, to inspire, to deliver hope, or to connect with my higher self to nurture self-healing. I figured this was my way of feeling seen and heard, after a lifetime of feeling invisible, in my own self-limiting belief.
But what I know now, is that I am writing for myself. I am writing to capture the memories I’ve been able to access. I am writing to share parts of myself that are faulty and vulnerable. And more than anything, I am writing so that one day, when I’ve forgotten who I am, you might read this to me, revealing the enormous love, bountiful blessings, and glorious magick that has manifested throughout my lifetime. You will remind me that I have been grateful for every little thing in my life, for the way that they turned out to be the important things, not so little at all.
So… in case I forget to say it later… Thank you for walking this path with me. I’m so happy you are here.
Last week, one of my Thursday circle-mates posed a question for our weekly conversation. It was based on a graphic she had shared earlier in the week, which found resonance. It was based on the idea of how we tend to be painfully aware of what triggers our anger, our fear, our trauma-based emotional and bodily responses to something in any given moment… and asking us to ponder what might be our HAPPINESS triggers.
When I saw this, I immediately thought of a recent sensation I had while standing in my kitchen, after a friend had left for home, following our first visit in more than a year… now that we are both fully vaccinated. So… here’s the funny thing about this thought (see my post about my swiss-cheese memory: https://beethelight.blog/2018/08/14/a-blessing-or-a-curse/), I couldn’t remember exactly what it was. Ha!
I swear, it was profound… that thought and that sensation in that moment! I should have written it down. Sigh… What I decided to do, was to write down whatever came to mind on a list of Happiness Triggers. I am now keeping this running list open on my desktop, so that I can add to it when things come up.
(What that feeling might have been, I decided, was this: Not only the one-on-one time I get to share with someone I love, but the time that follows when I can reflect on our togetherness with equal gratitude for the time I now have to spend with myself.)
Walking home from morning ritual at my parents’ house up the street today, I was being triggered left and right, literally (magick happening in neighbors’ yards, as I passed). So, I came home to write it all down.
*Asterisk marks a happiness trigger
It all started when I *woke up in my own bed, *in my own home of 25 years, with *plenty of time for my morning coffee ritual before it was time to be responsible to others. I shook off sleep with *the sound of a favorite book being read to me through Audible. Making my morning pour over coffee has become a form of prayer. As I pour hot water over the grounds of my *favorite coffee, I start with a counter clockwise drizzle to release the oils, and I offer gratitude for the aches and pains I feel, which remind me I am human, and I ask for the release and resolution of it, too. Then, in a clockwise motion, I pour hot water over the grounds with my daily gratitudes to the elements. *I am grateful for the eastern element of air which fills my lungs with the breath of life. *I am grateful for the southern fire which inspires me to action. *I am grateful for the western water that cleanses and heals as waves of loving emotion flow over me. *I am grateful for the northern earth that holds and sustains me, keeping me grounded.
I continue the coffee ritual as I pour cream into my cup, using techniques inspired by Kyle Grey and Jennifer Weigel suggestions for manifesting magick throughout the day. *Thank you in advance, dear Universe, for revealing your magick to me today in ways that I can understand. Thank you for inviting me to be mindful and aware of the messages you are sending, and may I receive them with clarity.
I enjoyed the time I had to myself, with coffee, and reading updates from friends on social media, and then got dressed to start the ‘responsible to others’ part of my day. I stepped out into the beauty of the day, *warm sun and a cool breeze, under a blue sky with puffy white clouds, surrounded by lush greenery on lawns and treetops. As I ventured up the street, a *large dragonfly floated far above me, as I crossed paths with *a flock of young Ibis. I delight in their presence on my block, and always eagerly greet them with, “HI-bis!” They went about their business of bug plucking, and scooted around the *squirrels at play. A *butterfly fluttered by as I turned up my parents’ driveway (*just 7 doors up from my own).
Though I do quite a lot during morning ritual with my folks, there are more days than not, when happiness is triggered for the sheer fact that *all I do is in service to their love and care, which enables a flow that comes with grace and ease. These days, *when I come to the end and tuck them in for the night, and return to my home at the end of the street, I feel enormous gratitude and peace for the blessings we have to be able to live this lifestyle, and for my strength and ability to manage all three of our lives relatively well. I am grateful that on most days… *this feels pretty easy, even though it is quite a lot.
After getting Pop changed and out of bed and into his chair, giving him and one of the dogs their meds, cooking breakfast, cleaning the kitchen, and ensuring everyone had what they needed for a peaceful day, I headed back out into this glorious Florida day. I passed by the flock of Ibis (HI-bis! Say hello to Isis for me!), still doing their part to aerate our lawns, remembering that it was this yard through which I *witnessed an opossum crossing last night (Hi Possum!). Then, in the next yard down, I stopped to *watch a black snake slithering its way through green grass (Oh! Hello!)
As I watched the snake and waved fare-the-well, my neighbor drove up in his little red Moke, I remembered the *bunch of bananas he left on my porch last week, and hoped he enjoyed the Hummingbird cupcakes I baked and shared thanks to his gift of inspiration. Then *another neighbor passed, as I stood in my own yard, *chatting with a blue jay who was singing in my oak tree, and we spoke of the blessing of this beautiful day.
I entered my sanctuary with a mind to *love on my kitties, and to *write all of this down. Next on my agenda is to *indulge in a good nap, and maybe even *a hot bath with epsom salt and essential oil. The bright red *cardinal in the tree outside my window shows up to remind me that my love language is ‘showing up’. So, thank you for showing up, dear ones. I love you more.
By the way, my eyes roll back in my head at *the smell of sweetgrass when I drive through the mountains of North Carolina, and pretty much the sound of *anything performed by Stevie Nicks or Fleetwood Mac starts a bonfire of joy for me. I would love to know what you have noticed triggers happiness for you!
Thank you for walking this path with me, and thank you in advance, dear Universe for making this a magickal day.
*Messages from the Universe Dragonfly: self realization; emotional maturity and understanding the deeper meaning of life Ibis: great wisdom and the ability to work magic Squirrel: preparedness, abundance, multi-tasking, new-life, rest, better days, and laying groundwork Snake: fertility or a creative life force, transformation Butterfly: change, renewal, hope, endurance, and courage to embrace the transformation to make life better Opossum: expect the unexpected Blue Jay: truth, faithfulness, and solidarity because they are vigilant in their tasks Cardinal: devotion, loving relationships, good fortune (for me – love is here)
I wrote about the many tools that have been helpful in caring for my father in October 2019, when his mobility was still possible but greatly challenged. A year later, things had changed. He fell and broke his hip in the fall, and he has not regained his ability to walk. Caring for him in this new chapter has brought some additional tools into my parents’ home, so it feels as if an update is in order. I am reminded by friends of the importance of sharing what we are learning about keeping our old people safe and well. May this be of benefit.
One of the challenges for eldercare in the United States is understanding Medicare and secondary insurance options and limitations. To bring Pop home from rehab before Thanksgiving, I had to acquire a hospital bed, a hoyer lift, and an adjustable bedside table (among other things). Medicare would cover a bed with electric adjustable head and foot, but you would have to manually crank the bed height (a burden when trying to protect the back of the caregiver). You can get a fully electric bed with a monthly fee. And if your loved one has a larger frame (6 ft. tall and 200 lbs), and a larger bed is needed, the monthly charge is significantly more.
Since my father is prone to bedsores and pressure wounds, I asked for a pneumatic air mattress for prevention. It turns out that Medicare will cover that… but only if your loved one already has multiple wounds that won’t heal. They care not to prevent them, apparently. Rather than leasing one from the hospital supply company, I found a mattress overlay that electronically moves air through pockets.
Medicare covers a hoyer lift for your loved ones who are unable to stand, walk, or transfer. That lift is completely manual… but they do not offer a fully electric option, even with a monthly fee. Since I am in my 50s and hope not to require eldercare before my parents are gone, it was absolutely necessary to have a fully electric version. This amazing tool allows me to get my father out of bed everyday and into his recliner, then back to bed at the end of the day. This gives him some level of normalcy, and I am grateful for this blessing. I found this lift through the same catalog that provided his recliner lift chair. It can be folded up for transport, but I doubt we’ll use that feature. I’m amazed by its maneuverability through tight spaces. We found the u-sling or the divided leg sling to work best for us. I was grateful to have gotten lessons from the staff at rehab…. but Dad and I also spent a morning watching videos on YouTube. It all takes practice, so be patient with yourself.
From the same catalog, I ordered a table for the hospital bed, so that we can do breakfast in bed when necessary. He may stay in bed longer on the days the bath-aid comes, and she is able to use it for her needs, as well.
We have a Costco membership, so that is where I get gloves and wipes, and doggy pee pads, which protect the mattress, and sometimes the tile floor where the aim-challenged dogs might tinkle now and then.
Since Pop can’t get to the bathroom any longer, I went searching for a urinal solution for someone with dexterity issues, that can serve for multiple uses overnight, when necessary. I found a cool device that I would have loved to have that time we slept on the steps of the Supreme Court when we were in our mid 20s. There were no open public restrooms in DC back then, and we had to go to the car to pee in a cup and then dump it out. (Yes, that actually is the craziest thing I’ve ever done.)
Other challenges are related to acquiring the care my father needs without being able to take him anywhere, since he can’t stand or transfer into the car. One exciting discovery was shared by his Physical Therapist. I was thrilled with the care he was receiving while Medicare covered home care for a few months after his homecoming, but longed for someone to care for his feet and toenails. They set up a Podiatrist to come to the house, which is when I learned Medicare covers these visits even when one is not receiving home care. Glory! Glory! We are in Central Florida, and had a great visit with Dr. Rivera from WoundMD. Pop’s feet have never looked so good. They can be reached at 407.720.4253.
UPDATED: Meeting with the Primary Care Physician and the Neurologist (for his epilepsy meds) can be done virtually, thank goodness, but the Dentist is a different story. When Pop complained about tooth pain and I started to panic about how to find a dentist that wouldn’t require transferring Pop out of a wheelchair (not to mention hiring transport to get him there), Mom hopped on line and found a mobile dentist. Imagine that! I think this is another Florida based business, but I’ve not had the time to research it. These magickal beings are from Tooth Fairy Mobile Dental Service. They provide comprehensive onsite dental care. You can find them at XXXXXXXXXXXXXXXX. The dentist and his hygenist came on Friday, and took x-rays and discussed a plan of care, which we’ll receive in writing Monday. I am removing my recommendation for this service, which has been a horrible disappointment. I now feel that they are designed to take advantage of elders who are in need of care.
The next big task was finding a new bath-aid, when Medicare stopped covering home health. This is something they do intermittently… ‘we see you need help, but if you aren’t making progress, we will stop providing that help’. I confirmed with his secondary insurance that they would cover a home health aid for bed baths, since he cannot stand to enter the walk-in tub, but when they referred me to the next step, I was denied further assistance. After several hours of telling my story to several people, I cried and gave up. I decided to let go of the need to have that assurance, just so I could get my poor guy a bath. I called several home health services, and found a few that had a 3 or 4 hour minimum of care for each visit. Since I am the full-time caregiver for my father, that felt wasteful of a fixed income for two retired social workers, so…. I kept looking until I found someone who offered a simple rate for bath assistance. A dear friend recommended the Visiting Nurses Association, and I learned they had a name change in our part of Florida. Now, Mediri Private Care, a partner of Orlando Health, we have found our lovely new bath aid for the foreseeable future. Again, in Central Florida, their number is 407.644.2433.
The biggest obstacle of the year, of course, has been how to protect my father from potential exposure to Covid-19, and how to get him vaccinated. Gratefully, my lifelong friend is on top of what is happening in community care, and she immediately alerted me to Florida’s program to vaccinate homebound residents. A week ago Saturday, we celebrated the delivery of the Johnson & Johnson (one and done) vaccine to Pop, at home. If you are in Florida and have someone who needs to be vaccinated for whom getting in line somewhere would be a challenge… here’s what to do: Send an Email to… HomeboundVaccine@em.myflorida.com to put in your request. They will reply with a link and a form to complete online. The 311 form allowed me to alert the Fire Department of my father’s inability to get out of the house on his own in an emergency, and in the comment section at the bottom of the form, I noted that we would like him to receive the vaccine at home as soon as possible. Our request was fulfilled within a week. They also are provided with one extra vaccine per household, in case someone else is in need. Since my mother and I had already been vaccinated, I was thrilled they were able to vaccinate an elderly neighbor of ours with the allotted extra dose.
For the last year, my greatest stress in caregiving has been that while handling all of the errands and grocery shopping for my parents, I would be responsible for killing my father by bringing home a virus I couldn’t see. I cried several times the day the CDC delivered his vaccine…. tears of joy and relief for him and for me.
When I list out my daily activities in eldercare for friends, that this is quite a lot is often affirmed. While I acknowledge that it certainly is quite a lot, I also understand that we are blessed to have access to the tools we need to make keeping Pop at home possible and somewhat simple.
Thank you in advance, dear Universe, for delivering all we need to keep our people safe and well with grace and ease, and may we be blessings to others, as our lives have been so blessed these many years.
Thank you for walking this path with me. Know that you are held gently in the light of love. Always. And… If there is anything you’ve learned about eldercare that is helpful, I’d love to hear about it!
One year ago today, I flew to Texas for a wedding. It was right at the beginning of the transition, from our former reality to the current (sur)reality of life in pandemic. This special occasion had been on my radar for quite some time. I did not know the couple well, at all, but I was invited by one of the great loves of my life… the boss who loved me.
Travel plans had been arranged in January, at which time, I was certain the concerns being raised about Covid-19 were overstated. Surely our leadership would make every effort to keep us safe. But days before departure, with an indication that our world would be shutting down after that weekend, the decision NOT to cancel overpowered the anxiety that affected my breathing. That empathetic symptom would rise, but not stay, over the next few months, as I questioned: Is this Covid, or is this anxiety? Is this Covid, or is this my annual allergy to oak pollen? Is this Covid, or am I just afraid that I will be responsible for infecting and killing my parents?
I flew in on Thursday night, and no one was wearing masks, but some were wiping down seats with disinfectant wipes. By my return on Sunday, there were several people in surgical masks for the flight home. The stress of travel in numbers was palpable. Gratefully, I had become conscious of touching my face twenty years ago, when I had lasik surgery and was warned about rubbing my eyes. So, I knew to be mindful of the transfer of germs from hands to eyes and nose, as a culprit for illness. Many trips through the subways in New York, holding onto poles and railings for support, helped nurture hyper-vigilance.
I arrived in darkness, and drove my rental Prius to the AirB&B. This was my first adventure with renting a room inside a house, as opposed to renting a whole house. I pulled up to the house, and received instructions via text message with a code for entrance, and how to find my room. There was no one around, but motion lights activated as I progressed through the foyer and up the stairway. I was quite pleased with my room with en suite bathroom. Though I never did meet my hosts, I felt safe and kind of appreciated the solitary nature of my stay. It felt like pilgrimage to me.
Because I was in a different time zone, I woke before the sun. I did some writing, googled nearby restaurants, and walked through darkness a few blocks to reach the one I chose. I was taken by the overwhelming cacophony of birdsong. I’d never heard anything like it. My friend told me later that they were migrating north from Mexico. I guess we don’t get that in Florida on the same scale. It was a glorious noise. There was one bird call that sounded to me like a slide whistle. It was dark, and they were in the trees, so I couldn’t see them. Later in the weekend, I figured out that they were Great Tailed Grackles… my new favorite.
I wasn’t going to meet up with the family until the traditional Chinese rehearsal dinner, so I had a full day for exploring the area. I’d heard a great deal about the Riverwalk area of San Antonio, and I’d hoped to find some good art galleries to devour. So, I started toward one end of the walk, thinking I would meander for a while and hit several along the way. Since I had such an early start to my day, I was apparently out too early for the art community, so I grabbed a latte at Halcyon Southtown, then walked along the river until Blue Star Contemporary opened. It was a beautiful day. I passed a few people on the trail, but it was clear that the world was starting to grow quiet.
My favorite exhibit was called Common Threads by Candace Hicks. She hand stitched 18 journals on canvas, each filled with synchronicities from stories she’d read and conversations she’d had. I read every single one, wearing white gloves and laughing or gasping at the brilliance of each piece. By the time I was done, I was ready for a nap… and then I would be off to start the family celebration. As I slipped into my private suite in a stranger’s house, my thoughts were on the words and letters that are stitched into the sturdy, canvas pages of my life with the boss who loved me, and how her beloved son’s marriage would be the beginning of a new journal for them.
When I arrived at the restaurant, my heart was already reaching. The last time I had seen her, we dialed up the boss who needed me (who hired us both), and as we got caught up on each other’s lives, I shared that I was considering not returning to the corporate world. I remember worrying about what they might think of me, for considering such a choice, when they had both worked so hard and given up so much of their personal lives until they each retired near age 60. I don’t know why I would be surprised, there was no judgment, only love. As I am for them, they will always be delighted for my authentic happiness.
You will probably think this sounds goofy, but when I walked into the restaurant, and saw my tiny sacred being for the first time in two years, my whole body lit up. It was much like the moment in a movie, when two loved ones are reunited after multiple obstacles have kept them apart. My spirit released a heavy sigh, and said: “Finally… it’s you.” There might have been an orchestra playing, I can’t really say. It may have only been heard inside my head.
Sadly, the boss who needed me was advised not to travel, so upon arrival, I only knew two people gathered for the wedding weekend, having met the groom and the sister of the groom only once or twice over the years. The parents of the groom, I knew well. I was seated at a large round table with other loved ones… and despite my difference (the only white girl at the table), I felt accepted and embraced by the people who had gone to college with the boss who loved me, or who had been treasured neighbors where she lived before she started the last phase of her career.
The neat thing about a destination wedding, is that there are multiple gatherings over the weekend, which allows one time to get to know the other important people in the lives of those for whom you are standing witness. The weekend included a traditional Chinese rehearsal dinner with 12 courses on the first night, including a roasted suckling pig – a symbol of the purity of the relationship being honored. The second day brought the blessings of not only a wedding, but also, a traditional Tea Ceremony honoring both sets of parents and the newlywed couple, before the reception. The final event was a brunch at the same Chinese restaurant, to send-off the guests departing for home.
Each event offered a series of traditions that were honored. Always the teacher, the boss who loved me and her husband explained every step… in English and in Cantonese. I wish I had taken notes. After the extensive meal, there was a comb ceremony, where the bride’s hair and the groom’s hair was combed by their parents. Again, the traditional blessings were spoken in two languages by the Groom’s parents:
May your marriage last a lifetime May you be blessed with a happy and harmonious marriage until old age May you be blessed with an abundance of children and grandchildren May you be blessed with longevity
The wedding ceremony was a ‘marriage’ of Western and Eastern traditions. The happy couple walked down the aisle in tuxedo and white dress, then changed briefly into traditional dress for the tea ceremony, then reappeared as before. The symbolism of the tea ceremony was of the children honoring the parents and their elders, while the parents and elders / ancestors offered blessings to the children. And then… there was food, wine, and dancing.
It was a pleasure to get to know the couple through their own eyes, as they spoke of their own love story, and to see in the groom the influence of his loving parents, whom I know so well.
Gathering for Sunday brunch before heading home was bitter sweet. These were now my people… those who threw the party and those who joined me in attendance. I felt accepted and embraced in this sacred collection of souls, and I was painfully aware that this kind of gathering would be the last, for a while.
I could have floated home, after a bookend afternoon alone on the Riverwalk, but for the heaviness in my heart. With a racist in the White House, xenophobia was already on the rise. I knew that my privilege was to travel while pasty white, while the person in the highest position in government was referring to Covid-19 as the China Virus.
I would be enormously cautious on my way home, and I would wear a mask for two weeks afterwards to ensure my parents’ safety (seems silly now that I didn’t do it the other way around, and wear a mask while traveling… the world was different in that moment). But I knew there was a very real concern for the safety of those from whom I had just parted. I worried for them, and I still do, as xenophobic attacks on Asians continue to rise. Those who enflamed, enacted, and enabled these actions are unforgivable and complicit in the harm that has come to our Asian American community, either physically or emotionally.
I would like to declare to the universe that LOVE, not hate, is viral. Let it be known throughout the world and for all time that we are all the same. We are all worthy of respect and caring, love and devotion, equity and fairness. We have all we need and plenty to share, so lets spread that love around. No one can be a threat to the love you have when you are inviting love to grow within and sharing it freely.
Finally, at this one year mark, many of us have or will soon receive a vaccine for our individual and communal protection. May the lessons we’ve learned stay with us long after the world has reopened. May we take not for granted the sheer joy of gathering in celebrations of love – new love, long love, family love, community love, earth love, lost love (especially poignant, as funerals and memorials have been delayed for so many), and every incarnation of love made manifest. May we hold onto what has been found in silence and solitude, as we have gathered up the beauty of our true selves formerly hidden in perpetual activity and distraction. May we find more ways to live fully, as we are no longer defined by the work we do, but by the love we give. And may all of the inequities and disparities revealed by this pandemic be permanently brought to light and find healing and grace for the change that is long overdue.
Happy Anniversary to the Happy Couple, and to those of us who made it safely through an extraordinary year. There is hope on the horizon and love lights our way. Thank you for walking this path with me. I love knowing you are here. MAY YOU BE BLESSED WITH LONGEVITY.
My parents were watching the news when I stopped by to prepare a late lunch for them today. As I was stepping back out to run an errand, my mother asked: “Don’t you want to watch the death of our country?” My reply: “No! We are witnessing our rebirth.”
I cannot tell you why, as we watched domestic terrorists attacking and entering our sacred halls of Congress, mingled with horror and disbelief was a sensation between my heart and stomach that felt like… well, excitement.
The truth is, anyone with an ounce of intuition and an ear for actual news, rather than the faux-kind, could see this event coming. So, even though a seditious mob ransacked the halls that house our laws, the fact is, there were already a number of seditious traitors inside. So, one can hardly be surprised that the behavior of those within felt like an invitation to those who left the rally at the White House to follow their leader’s instructions.
That’s how I see it from where I sit, anyway. I keep hoping Randy Rainbow will do a song about GOP sedition to the tune of “Tradition” from Fiddler on the Roof.
As the news was unfolding, I could not shake that odd feeling of anticipation. I had this overwhelming sense that this was it. We are witnessing the final death knell of the GOP. Maybe even the beginning of the end of the patriarchy. As friends expressed disgust and dismay, fear of civil war, and the likelihood of things going badly, I did not lose my sense of awe.
So many images have come to mind today. One is of the Hindu Goddess of Destruction, Kali. Another is the Celtic Goddess of Rebirth, Cerridwen. Both archetypes inform us of the beauty and necessity of destruction. One cannot rebuild on a cracked and broken foundation. It will not hold.
In order to rebuild a bathroom, you don’t just remove the wallpaper, you take it down to the studs to see what might be cracked or rotten beneath the facade. That mold that festers can make you sick down the road, so it must be revealed and then sealed.
Other images that have risen for me today are from film favorites. I could visualize the invasion of our democratic process today in clips and photos, and it was met with a scene from Lord of the Rings. I saw the Ents arriving to liberate Isengard. That scene matched the feeling in my body. When that scene arrives, it is the beginning of the end. There is still darkness ahead, and many orcs to be vanquished, but even though the work remains difficult, one can tell that perseverance will be rewarded. The light returns and chases away the shadows. It always does.
The other day, a friend of mine was doing a tarot reading for herself, and into her future fell the Tower. (It is an image that seems unsettling, with a lightning strike and people falling as the building crumbles.) I squealed with excitement, which was counter to her sigh of dread. I reminded her that the most important moments of my life were ‘Tower’ moments. They were occasions when the rug was pulled from beneath me, but revealed a stunning hard wood floor.
To be sure, there is darkness ahead for our country (at least one person was killed in today’s terrorist attack, and it feels as if justice failed to remove her blindfold, not to mention that a lack of leadership has cost us hundreds of thousands of lives to Covid-19), but there is also light. The dark tower is falling. The gift of this nightmare presidency will surely be that the facade of our beloved country has been peeled away, and every crack and spot of mold has been revealed. There will be new foundations poured, and stronger supports installed.
Last year’s word for me was TRUST. I wanted not only to be surrounded by those I can trust, but I intended to be trustworthy, and above all else, I wanted to learn to trust myself. So, I have to say… this odd excitement that is rising within me on a very dark day in American history… I trust what she is telling me. She is teaching me about FAITH. She is informing me that the word for 2021 is TRUTH, and that we shall indeed… build back better. Bring it on, 46!